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World’s Tallest Slum
#video #Venezuela
You might remember this grim tower from the Homeland series. The half-finished, abandoned skyscraper is one of Caracas’ infamous landmarks. Nicknamed the Tower of David (Torre de David), it once provided shelter for hundreds of low-income families with nowhere else to go.
The vertical slum operated as a commune. Squatters gathered for meetings and various activities, including cleaning common areas. Residents had a gym, convenience stores, and barbershops so they could live without leaving their tower.
However, the squatters had to leave in 2014 after the government deemed the Tower of David unsafe to live in. Then, the building began to lean in 2018 after an earthquake hit.
Follow: https://news.1rj.ru/str/rtdocumentary
#video #Venezuela
You might remember this grim tower from the Homeland series. The half-finished, abandoned skyscraper is one of Caracas’ infamous landmarks. Nicknamed the Tower of David (Torre de David), it once provided shelter for hundreds of low-income families with nowhere else to go.
The vertical slum operated as a commune. Squatters gathered for meetings and various activities, including cleaning common areas. Residents had a gym, convenience stores, and barbershops so they could live without leaving their tower.
However, the squatters had to leave in 2014 after the government deemed the Tower of David unsafe to live in. Then, the building began to lean in 2018 after an earthquake hit.
Follow: https://news.1rj.ru/str/rtdocumentary
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#video #Peru
Hundreds of thousands of Peruvian women were forcibly sterilised between 1996-2000 as part of President Alberto Fujimori’s family planning programme. The initiative was launched to reduce poverty and cut birth rates among the poor. While it was supposed to be consensual, women involved in the programme say otherwise. Most of the victims came from poor indigenous communities.
Josefa was at home when nurses came and forced her to go to the hospital. She still recalls waking up after the procedure and seeing other women crying out their husbands’ names in pain. In the following years, Josefa suffered from infections and cancer. Decades later, Josefa and others are still seeking justice through a class action suit against the ex-president.
Follow: https://news.1rj.ru/str/rtdocumentary
Hundreds of thousands of Peruvian women were forcibly sterilised between 1996-2000 as part of President Alberto Fujimori’s family planning programme. The initiative was launched to reduce poverty and cut birth rates among the poor. While it was supposed to be consensual, women involved in the programme say otherwise. Most of the victims came from poor indigenous communities.
Josefa was at home when nurses came and forced her to go to the hospital. She still recalls waking up after the procedure and seeing other women crying out their husbands’ names in pain. In the following years, Josefa suffered from infections and cancer. Decades later, Josefa and others are still seeking justice through a class action suit against the ex-president.
Follow: https://news.1rj.ru/str/rtdocumentary
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The ups and downs of women’s rights in Afghanistan
#video #Afghanistan
Can you believe Afghan’s capital, Kabul, was once known as the ‘Paris of Central Asia’, where women dressed in Western clothes and studied and worked alongside men?
That’s a far cry from how the things look today. Despite promises to be more respectful and inclusive, the resurgent Taliban are once again imposing restrictions on women, just as they did during their first reign from 1996-2001.
Watch our new video now to find out more about Afghan women’s long struggle for rights and how the Taliban is threatening to erase them once again - https://youtu.be/usg8Z0Vlj5s
Follow: https://news.1rj.ru/str/rtdocumentary
#video #Afghanistan
Can you believe Afghan’s capital, Kabul, was once known as the ‘Paris of Central Asia’, where women dressed in Western clothes and studied and worked alongside men?
That’s a far cry from how the things look today. Despite promises to be more respectful and inclusive, the resurgent Taliban are once again imposing restrictions on women, just as they did during their first reign from 1996-2001.
Watch our new video now to find out more about Afghan women’s long struggle for rights and how the Taliban is threatening to erase them once again - https://youtu.be/usg8Z0Vlj5s
Follow: https://news.1rj.ru/str/rtdocumentary
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The most dangerous place in Guatemala
#video #Guatemala
Zone 3, or Basurero in Guatemala City, is where you don’t want to find yourself.
All the trash from Guatemala City gets dumped in one place called Zone 3, or Basurero (dump). It’s an entire district where people work and live. Locals call it ‘the mine’ because they may come across gold, mobile phones and money. But there’s also a great chance of finding a severed head left by criminal gangs.
There’s another great risk. Mountains of trash collapse and result in avalanches that sweep away everything on their path. Dozens of people can get buried alive in the garbage.
Despite all the perils, locals can’t afford to leave. The giant dump, or as they call it, ‘the beast’, is their only way to survive.
Follow: https://news.1rj.ru/str/rtdocumentary
#video #Guatemala
Zone 3, or Basurero in Guatemala City, is where you don’t want to find yourself.
All the trash from Guatemala City gets dumped in one place called Zone 3, or Basurero (dump). It’s an entire district where people work and live. Locals call it ‘the mine’ because they may come across gold, mobile phones and money. But there’s also a great chance of finding a severed head left by criminal gangs.
There’s another great risk. Mountains of trash collapse and result in avalanches that sweep away everything on their path. Dozens of people can get buried alive in the garbage.
Despite all the perils, locals can’t afford to leave. The giant dump, or as they call it, ‘the beast’, is their only way to survive.
Follow: https://news.1rj.ru/str/rtdocumentary
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Diving for gold
#video #Philippines
The children in the small Philippine town of Paracale get used to working from an early age. They often skip school because they have nothing to eat. Then, to make $2-3 a day, they pan for gold. While kids work on the surface, adults dive into deep, narrow wells to extract the precious metal.
Prospectors use diving masks with snorkels to breathe underwater. But if walls collapse, the divers have no way out. ‘While you’re down the mine, you have one foot in the grave’ is a popular saying in Paracale.
Check out the full documentary to hear more!
Follow: https://news.1rj.ru/str/rtdocumentary
#video #Philippines
The children in the small Philippine town of Paracale get used to working from an early age. They often skip school because they have nothing to eat. Then, to make $2-3 a day, they pan for gold. While kids work on the surface, adults dive into deep, narrow wells to extract the precious metal.
Prospectors use diving masks with snorkels to breathe underwater. But if walls collapse, the divers have no way out. ‘While you’re down the mine, you have one foot in the grave’ is a popular saying in Paracale.
Check out the full documentary to hear more!
Follow: https://news.1rj.ru/str/rtdocumentary
RTDocumentary
Barbarity or tradition? #video #theFaroeIslands On Denmark’s Faroe Islands, pilot whales are slaughtered in a centuries-old tradition called ‘the grind’. The sight is terrifying – the mammals are driven into a bay by small boats and hacked to pieces by a…
This spectacle has shocked Danish and international society. In Denmark, 1,428 dolphins have been slaughtered in a traditional Faroe Islands hunt. This is believed to be the largest ever number of cetaceans killed in the ‘grind’, where Islanders drive dolphins or pilot whales to shore and then knife them. This time, a super-pod of Atlantic White-Sided Dolphins was driven for about 45 km to shore by speed boats and jet skis, where every animal was killed.
The grind is a centuries-old tradition in this part of Denmark. Nevertheless, this mass cull shocked local opinion, as rules were broken. In particular, unlicensed participants were allowed to join in. As they were untrained, they weren’t able to kill the dolphins instantly, and many died a slow and painful death. In addition, dolphins were run over by speedboats and some were hacked to death by propellers. For this reason, locals reported the hunt to the police.
The tradition of killing dolphins used to be justified by the need for meat on the barren islands. However, this latest hunt has produced more meat than the whole district can consume. “My guess is that most of the dolphins will be thrown in the trash or in a hole in the ground,” one local said. The entire population of the islands is around 48,000. Many locals are opposed to the hunt, but they avoid speaking out for fear of reprisals, according to NGO Sea Shepherd.
To find out more about the traditional Faroese slaughter of dolphins and whales; watch our film, Red Waters
The grind is a centuries-old tradition in this part of Denmark. Nevertheless, this mass cull shocked local opinion, as rules were broken. In particular, unlicensed participants were allowed to join in. As they were untrained, they weren’t able to kill the dolphins instantly, and many died a slow and painful death. In addition, dolphins were run over by speedboats and some were hacked to death by propellers. For this reason, locals reported the hunt to the police.
The tradition of killing dolphins used to be justified by the need for meat on the barren islands. However, this latest hunt has produced more meat than the whole district can consume. “My guess is that most of the dolphins will be thrown in the trash or in a hole in the ground,” one local said. The entire population of the islands is around 48,000. Many locals are opposed to the hunt, but they avoid speaking out for fear of reprisals, according to NGO Sea Shepherd.
To find out more about the traditional Faroese slaughter of dolphins and whales; watch our film, Red Waters
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Crawling up Kilimanjaro with no legs
#video #Tanzania
When Aleksandr was born with no legs and deformed fingers, his mother abandoned him. He grew up in an orphanage for kids with disabilities in a remote Russian town. However, Aleksandr has always aimed high and dreamed big.
Aleksandr got lucky and was selected to take part in a US humanitarian project. At the age of 15, he walked on his new prostheses for the first time in his life. His temporary foster parents couldn’t let him go and adopted Aleksandr.
To inspire kids with disabilities, Aleksandr and his friends from the orphanage took on the challenge to climb Africa’s highest mountain Mount Kilimanjaro at 5,895 metres. RT Documentary witnessed their incredible feat and made a film - https://youtu.be/v2Sz3k9gKp8
For now, Aleksandr lives and studies in Boston, USA, and has climbed Kilimanjaro for a second time!
Follow: https://news.1rj.ru/str/rtdocumentary
#video #Tanzania
When Aleksandr was born with no legs and deformed fingers, his mother abandoned him. He grew up in an orphanage for kids with disabilities in a remote Russian town. However, Aleksandr has always aimed high and dreamed big.
Aleksandr got lucky and was selected to take part in a US humanitarian project. At the age of 15, he walked on his new prostheses for the first time in his life. His temporary foster parents couldn’t let him go and adopted Aleksandr.
To inspire kids with disabilities, Aleksandr and his friends from the orphanage took on the challenge to climb Africa’s highest mountain Mount Kilimanjaro at 5,895 metres. RT Documentary witnessed their incredible feat and made a film - https://youtu.be/v2Sz3k9gKp8
For now, Aleksandr lives and studies in Boston, USA, and has climbed Kilimanjaro for a second time!
Follow: https://news.1rj.ru/str/rtdocumentary
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All that glitters is not gold
#video #India
Mica is what makes your eyeshadow, lipsticks and nail polish shine and shimmer. It’s a natural mineral that can be found in India’s Jharkhand State. It has the world’s largest mica deposits, which are of high quality and in high demand.
Mica production was once a thriving industry but was made illegal in the 1980s. Nowadays, locals hack at rocks in abandoned mines. It’s easy to cut from razor-sharp mica flakes and get respiratory illnesses from inhaling dense mica dust. So both adults and children mine mica.
Locals sell the mineral for around 30-50 cents per kilo - that’s a sharp difference from the hundreds of dollars offered on the international market. And Jharkhand miners are often unaware of mica’s glamorous uses.
While most mica mines are illegal, processing plants are allowed. So even though cosmetic brands don’t buy mica directly from illicit mines, they rarely question where their mica suppliers come from.
Follow: https://news.1rj.ru/str/rtdocumentary
#video #India
Mica is what makes your eyeshadow, lipsticks and nail polish shine and shimmer. It’s a natural mineral that can be found in India’s Jharkhand State. It has the world’s largest mica deposits, which are of high quality and in high demand.
Mica production was once a thriving industry but was made illegal in the 1980s. Nowadays, locals hack at rocks in abandoned mines. It’s easy to cut from razor-sharp mica flakes and get respiratory illnesses from inhaling dense mica dust. So both adults and children mine mica.
Locals sell the mineral for around 30-50 cents per kilo - that’s a sharp difference from the hundreds of dollars offered on the international market. And Jharkhand miners are often unaware of mica’s glamorous uses.
While most mica mines are illegal, processing plants are allowed. So even though cosmetic brands don’t buy mica directly from illicit mines, they rarely question where their mica suppliers come from.
Follow: https://news.1rj.ru/str/rtdocumentary
The Buddhist miracle
#photo #Russia
Dashi-Dorzho Itigelov is considered a miracle in the Buddhist region of Buryatia.
He sat in a lotus pose and sank into deep meditation nearly a century ago, but when his body was exhumed, witnesses were stunned.
There was no smell, his body was perfectly preserved. His skin is still elastic and his limbs are flexible. In 1927, Dashi-Dorzho Itigelov gathered his pupils and asked them to visit him in 30 years, and to take him out of the earth in 75 years. According to his wish, he was dug out in 2002.
Dashi-Dorzho Itigelov has been resting in his native Buryatia ever since. RT Documentary went to see the monk’s body in the Ivolginsky temple. Here are some pictures from a prayer service dedicated to Itigelov’s return and the 280th anniversary of Buddhism’s recognition in Russia.
Have you ever heard about the incorruptible body of Dashi-Dorzho Itigelov?
Follow: https://news.1rj.ru/str/rtdocumentary
#photo #Russia
Dashi-Dorzho Itigelov is considered a miracle in the Buddhist region of Buryatia.
He sat in a lotus pose and sank into deep meditation nearly a century ago, but when his body was exhumed, witnesses were stunned.
There was no smell, his body was perfectly preserved. His skin is still elastic and his limbs are flexible. In 1927, Dashi-Dorzho Itigelov gathered his pupils and asked them to visit him in 30 years, and to take him out of the earth in 75 years. According to his wish, he was dug out in 2002.
Dashi-Dorzho Itigelov has been resting in his native Buryatia ever since. RT Documentary went to see the monk’s body in the Ivolginsky temple. Here are some pictures from a prayer service dedicated to Itigelov’s return and the 280th anniversary of Buddhism’s recognition in Russia.
Have you ever heard about the incorruptible body of Dashi-Dorzho Itigelov?
Follow: https://news.1rj.ru/str/rtdocumentary
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Why aren’t Indian widows allowed to remarry?
#video #India
According to an old Indian custom, a widow is exiled from her home after her husband’s death. Widows are believed to bring bad luck and her sins are blamed for the man’s death. There was a time when Indian widows practiced suttee – a self-immolation ritual.
Modern widows don’t have to throw themselves on funeral pyres, yet it doesn’t make a lifetime of atonement less tragic. Widows cut their hair short, put on a white sari, and live off charity. Many flock to the holy town of Vrindavan, where the Hindu god Krishna allegedly spent most of his childhood.
There are approximately 40 million widows in India. The cruel practice lives on, but rights groups and volunteers have opened shelters and ashrams for widows and provide them with food and medical care. Check out the documentary for more and share your thoughts in comments.
Follow: https://news.1rj.ru/str/rtdocumentary
#video #India
According to an old Indian custom, a widow is exiled from her home after her husband’s death. Widows are believed to bring bad luck and her sins are blamed for the man’s death. There was a time when Indian widows practiced suttee – a self-immolation ritual.
Modern widows don’t have to throw themselves on funeral pyres, yet it doesn’t make a lifetime of atonement less tragic. Widows cut their hair short, put on a white sari, and live off charity. Many flock to the holy town of Vrindavan, where the Hindu god Krishna allegedly spent most of his childhood.
There are approximately 40 million widows in India. The cruel practice lives on, but rights groups and volunteers have opened shelters and ashrams for widows and provide them with food and medical care. Check out the documentary for more and share your thoughts in comments.
Follow: https://news.1rj.ru/str/rtdocumentary
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A Vietnamese man buries aborted children
#video #Vietnam
Phuc Tong is a local hero in Nha Trang, Vietnam. He picks up aborted foetuses from hospitals, where they would otherwise be disposed of as trash. Phuc Tong has buried thousands of unborn children in a cemetery he built himself.
Many women in Vietnam don’t want to have babies out of wedlock and choose to end their pregnancies. The country has one of the highest abortion rates in Asia. Phuc Tong also looks for hesitant mothers to convince them to keep their babies. If an expectant mother can’t take care of a child, Phuc Tong raises it as his own.
His quest to save babies began as a pact he made with God during his wife’s difficult delivery. He promised himself that if his wife and their child survived, he would help others in need.
Follow: https://news.1rj.ru/str/rtdocumentary
#video #Vietnam
Phuc Tong is a local hero in Nha Trang, Vietnam. He picks up aborted foetuses from hospitals, where they would otherwise be disposed of as trash. Phuc Tong has buried thousands of unborn children in a cemetery he built himself.
Many women in Vietnam don’t want to have babies out of wedlock and choose to end their pregnancies. The country has one of the highest abortion rates in Asia. Phuc Tong also looks for hesitant mothers to convince them to keep their babies. If an expectant mother can’t take care of a child, Phuc Tong raises it as his own.
His quest to save babies began as a pact he made with God during his wife’s difficult delivery. He promised himself that if his wife and their child survived, he would help others in need.
Follow: https://news.1rj.ru/str/rtdocumentary
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What’s it like to feel constantly restless?
#video #USA
Josh suffers from akathisia, a disorder that makes it difficult to stay still. The inner restlessness Josh feels at all times makes him want to crawl out of his own skin. His body always wants to be on the move, so he paces and moves his hands.
His condition is a side effect of a medication he was prescribed to treat anxiety. It hit when Josh and his wife were having their fifth child. He moved so much he couldn’t hold their newborn baby. The only relief he has is riding a bike because he can ‘sit and move at the same time.’
You can hear more heartbreaking stories of people like Josh, who have suffered from severe side effects of prenoscription drugs - https://youtu.be/5722_XclQkY
Follow: https://news.1rj.ru/str/rtdocumentary
#video #USA
Josh suffers from akathisia, a disorder that makes it difficult to stay still. The inner restlessness Josh feels at all times makes him want to crawl out of his own skin. His body always wants to be on the move, so he paces and moves his hands.
His condition is a side effect of a medication he was prescribed to treat anxiety. It hit when Josh and his wife were having their fifth child. He moved so much he couldn’t hold their newborn baby. The only relief he has is riding a bike because he can ‘sit and move at the same time.’
You can hear more heartbreaking stories of people like Josh, who have suffered from severe side effects of prenoscription drugs - https://youtu.be/5722_XclQkY
Follow: https://news.1rj.ru/str/rtdocumentary
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The Luxury of Water
#video #India
After watching this video, you’ll probably be more grateful that you have access to water. In India’s Punjab state, people spend huge amounts of time in search of safe water, as H20 has become a luxury in this arid region.
People walk many kilometres to fill their containers at a large reservoir, or they wait in lines to half dried up wells. They also dig ponds by hand to collect rainwater for free.
Some go as far as to take on an additional wife, so one can carry water, while the other does the household chores. This clip is from our documentary, H2Woe, that we highly recommend you watch.
Do you have problems with water where you live?
Follow: https://news.1rj.ru/str/rtdocumentary
#video #India
After watching this video, you’ll probably be more grateful that you have access to water. In India’s Punjab state, people spend huge amounts of time in search of safe water, as H20 has become a luxury in this arid region.
People walk many kilometres to fill their containers at a large reservoir, or they wait in lines to half dried up wells. They also dig ponds by hand to collect rainwater for free.
Some go as far as to take on an additional wife, so one can carry water, while the other does the household chores. This clip is from our documentary, H2Woe, that we highly recommend you watch.
Do you have problems with water where you live?
Follow: https://news.1rj.ru/str/rtdocumentary
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#video #India
Lalit’s face and body are covered with hair; it’s the result of a genetic disorder. The condition is called werewolf syndrome and it is extremely rare - only 50-60 people in the world have it. Though its nature has been defined as genetic, which gene exactly causes it, is still unclear. And it’s no surprise - there are 25,000 genes in a human and they’re all responsible for a certain function. Besides, genetics is a young science and a lot has yet to be discovered.
In the meantime, Lalit has learnt to deal with the inconveniences the hair causes, as it gets in his eyes and makes it difficult to eat. He has also become a local celebrity, “Everywhere I go, people see me and they recognise me instantly”. He has a company of friends and huge plans for the future.
Tune in for the premiere of our new film We Are Different on our YouTube channel - https://youtu.be/JL5xKeP_AF0
Follow: https://news.1rj.ru/str/rtdocumentary
Lalit’s face and body are covered with hair; it’s the result of a genetic disorder. The condition is called werewolf syndrome and it is extremely rare - only 50-60 people in the world have it. Though its nature has been defined as genetic, which gene exactly causes it, is still unclear. And it’s no surprise - there are 25,000 genes in a human and they’re all responsible for a certain function. Besides, genetics is a young science and a lot has yet to be discovered.
In the meantime, Lalit has learnt to deal with the inconveniences the hair causes, as it gets in his eyes and makes it difficult to eat. He has also become a local celebrity, “Everywhere I go, people see me and they recognise me instantly”. He has a company of friends and huge plans for the future.
Tune in for the premiere of our new film We Are Different on our YouTube channel - https://youtu.be/JL5xKeP_AF0
Follow: https://news.1rj.ru/str/rtdocumentary
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People on the brink of extinction
#video #Russia
The Nivkh are the indigenous people of Russia's Sakhalin Island who traditionally, have always been fishermen and hunters. Ever since the Nivkh were discovered by outsiders, the tribe has been subjected to assimilation, first by the Japanese and then Russians. Their language has largely been forgotten and the population has dwindled to around 5,000.
There is though still at least one man who can speak Nivkh. Vladimir Sangi believes that without it, Nivkh identity will disappear forever. He also maintains that only men can marry outside the tribe and maintain a true Nivkh line.
Not everyone agrees with him, that only fathers can produce true Nivkh offspring. They build families with people from other ethnicities and focus more on passing on Nivkh culture, such as fishing, making clothes from fish skins, and celebrating Nivkh holidays.
Do you believe a culture can be saved without preserving the language?
Follow: https://news.1rj.ru/str/rtdocumentary
#video #Russia
The Nivkh are the indigenous people of Russia's Sakhalin Island who traditionally, have always been fishermen and hunters. Ever since the Nivkh were discovered by outsiders, the tribe has been subjected to assimilation, first by the Japanese and then Russians. Their language has largely been forgotten and the population has dwindled to around 5,000.
There is though still at least one man who can speak Nivkh. Vladimir Sangi believes that without it, Nivkh identity will disappear forever. He also maintains that only men can marry outside the tribe and maintain a true Nivkh line.
Not everyone agrees with him, that only fathers can produce true Nivkh offspring. They build families with people from other ethnicities and focus more on passing on Nivkh culture, such as fishing, making clothes from fish skins, and celebrating Nivkh holidays.
Do you believe a culture can be saved without preserving the language?
Follow: https://news.1rj.ru/str/rtdocumentary
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#video #Argentina
Imagine finding out that the family you grew up with had stolen you. Juan Cabandie from Argentina had always had doubts. His father was with the federal police intelligence service during the military rule in Argentina in the 1970s. It took Juan a quarter of a century to discover that his violent father was actually his abductor.
Juan Cabandie was one of some 500 babies taken by the Argentinian junta. Children were forcibly taken from political dissidents and given to childless families who worked for the military regime who raised them as their own.
Without the stolen children's grandmothers, they might never have known their true origins. The activist Grandmothers of Plaza de Mayo have helped identify more than 120 people who were stolen by the junta.
Juan has learned about his birth parents who lost their lives to the regime. He also sat through a trial that sentenced the person responsible for his abduction to 17 years in prison.
Follow: https://news.1rj.ru/str/rtdocumentary
Imagine finding out that the family you grew up with had stolen you. Juan Cabandie from Argentina had always had doubts. His father was with the federal police intelligence service during the military rule in Argentina in the 1970s. It took Juan a quarter of a century to discover that his violent father was actually his abductor.
Juan Cabandie was one of some 500 babies taken by the Argentinian junta. Children were forcibly taken from political dissidents and given to childless families who worked for the military regime who raised them as their own.
Without the stolen children's grandmothers, they might never have known their true origins. The activist Grandmothers of Plaza de Mayo have helped identify more than 120 people who were stolen by the junta.
Juan has learned about his birth parents who lost their lives to the regime. He also sat through a trial that sentenced the person responsible for his abduction to 17 years in prison.
Follow: https://news.1rj.ru/str/rtdocumentary
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People with ‘butterfly’ skin
#video #Russia
‘It’s one of the 10 most horrible diseases man has ever suffered from’. People with epidermolysis bullosa (EB) have extremely fragile skin, like the wings of a butterfly. Just touching a patient can cause painful wounds that are slow to heal. The condition is genetic, very rare, and still incurable. Treatment mostly involves carefully dressing blistering skin.
Some forms of EB are so severe, they make fingers and toes fuse together which is exactly what happened to Viktoria from Russia. Her dreams are to learn to drive, not be dependent on her parents and meet a man one day who'll put a ring on her restored finger. She's even had surgery in an effort to make those dreams come true. Find out more about Viktoria and other ‘butterfly’ people in our documentary.
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#video #Russia
‘It’s one of the 10 most horrible diseases man has ever suffered from’. People with epidermolysis bullosa (EB) have extremely fragile skin, like the wings of a butterfly. Just touching a patient can cause painful wounds that are slow to heal. The condition is genetic, very rare, and still incurable. Treatment mostly involves carefully dressing blistering skin.
Some forms of EB are so severe, they make fingers and toes fuse together which is exactly what happened to Viktoria from Russia. Her dreams are to learn to drive, not be dependent on her parents and meet a man one day who'll put a ring on her restored finger. She's even had surgery in an effort to make those dreams come true. Find out more about Viktoria and other ‘butterfly’ people in our documentary.
Follow: https://news.1rj.ru/str/rtdocumentary